Living with Adult Congenital Heart Disease: Contact

About the Creator

My name is Angie and I have congenital heart disease. The condition I was diagnosed with at birth is Tetralogy of Fallot. Shortly after my sixth birthday, I had open heart surgery to repair this condition. In my early 20s I started getting heart palpitations. By my mid-20s the pumping capacity of the left chamber of my heart had weakened. At 31 I gave birth to a healthy baby girl. At 32 I had a cardiac arrest. A month after my cardiac arrest I feel compelled to share my story, as I’m learning to live with the uncertainty of being an adult with congenital heart disease (CHD). By sharing my experiences I hope to offer support and relevant resources for people suffering from adult congenital heart disease (ACHD) as well as their families and friends. My long term vision is to create a support network. I hope you find my story useful.

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