Physical Afflictions

End of June marks three months since the cardiac arrest.

Apart from the mental which I've started to delve into, there is a series of physical afflictions I've been dealing with in relation to the arrest. I have only felt comfortable sharing these now and I do so with some hesitation, but feel that I need to in order to continue on the path of healing. 

I saw my chiropractor Luke on Saturday and finally had a long overdue adjustment. Based on Luke's advice, I couldn't get my left side adjusted earlier than eight weeks after the ICD insertion, but didn't feel comfortable, mentally or physically ready to get any adjustments done until now. I've been feeling stiff and sore in different locations in my body, particularly after laying in bed and sitting around for three weeks after getting the ICD put in (which was approximately one week after the arrest). The cardiac rehabilitation program with the physiotherapist has helped, but new injuries/issues arose (e.g. hips out of whack, so kept getting a sore knee when training). I really needed an adjustment and now feel so much better for it! There were a lot of blockages, particularly (and not surprisingly!) on my left side and top half of my body.

The ICD was inserted in the left sub mammary pocket. It's usually inserted underneath the left collarbone and noticeably protrudes under the skin, but since I have a zipper scar running down the middle of my chest; and my left breast plate protrudes more than the right (both from my open heart surgery in 1988), I wanted to avoid bringing even more attention to my chest. 

For the first six weeks after the ICD insertion, I wasn't allowed to lift my left arm above shoulder height. Even if I wanted to I couldn't, because there was a lot of soreness from the operation and felt the strange sensation of the ICD leads pulling with any sudden or lifting movement. They needed time to fuse with the tissue and this takes about six weeks.

Apart from the internal stuff, I have two external scars from the surgical incisions: one close to my left collarbone where the leads were inserted; and one underneath my left breast where the ICD was inserted. Also, I have a significant scar on the left side of my neck (looks like a massive pimple) where the IV was inserted while I was in intensive care.

The whole underneath of my left breast was severely bruised from the operation and because of this and the incision underneath it, I couldn't wear a bra for four weeks.

My chest was constantly sore from the CPR, which had caused me to have fractured ribs. These can take at least six weeks to heal. Every time I breathed in I would experience sharp pains. So I got used to a shallow, half breathing type of constant state to minimise the pain.

I couldn't sleep on my front (it's my preferred go-to-sleep position) or left side, so it was impossible to get comfortable and often to fall asleep.

I had bruising and track marks like a junkie, running up and down my arms from the IVs in hospital and daily blood tests I had for two weeks while I was admitted.

I had (and still have, but somewhat slightly calmer now) pimples on mainly my neck, but also my face, back and backside from the stress from the whole event. I feel like I'm going through puberty...again. It wasn't fun the first time and it's not fun a subsequent one.

Most importantly, from being bed-ridden for a month, apart from the stiffness, I became totally unfit and struggled to even go down the twelve stairs in our building to get to the ground level. Not to mention the constant tiredness and low energy levels.

On Friday I graduated from the Cardiac Rehabilitation/Heart Failure Program at St George Hospital. I got quite emotional and upon reflection, realised what a massive milestone it is for me, particularly taking all the physical afflictions listed above into consideration. It feels like a massive achievement because I've come so far from being a fragile post operative and cardiac arrest patient, to being well on my way to feeling strong, fit and energetic again.

The visit to Luke and a couple of things he said got me thinking a lot about all these physical afflictions and how I feel about the ICD. I was hugging Chris the other night and could feel it there  between us. I feel it every night I lie in bed on my left side to go to sleep. It still feels so foreign and strange, a part that doesn't belong to me but yet is connected and vital. It's such a strange duality to experience and with time, one that I need to accept as being part of me.

I've come a long way but now realise that it's just the beginning. There's still a lot of work to do and these things can't be rushed, particularly the mental aspects. I'm just taking it one day and one milestone at a time; and practicing my deep breathing.

33 Minutes

After my cardiac arrest I was unconscious for 33 minutes before being revived.

In that time you could watch a TV show, with minutes to spare. You could cook a quick meal. You could have a lengthy phone conversation with a dear friend. You could go for a jog, bike ride or swim. Or you could save someone's life.

I just lay there on the floor, occasionally gasping for air and then stopping, lifeless, while my husband Chris performed CPR. He dialed "000" and had the phone operator on speaker. Although he had done a first aid course a few months back, the operator guided him and offered extra support. In the meantime, our 10-month old daughter played on her play mat with her toys quietly, thinking that mum and dad were playing next to her too.

The two ambulance officers arrived, Chris ran to open the door. They continued CPR. Chris described it as a never ending passage of time. For as quickly as everything was happening, everything was simultaneously moving in slow motion.

The CPR wasn't working. It took 2 x 200J shocks and one dose of adrenaline to revive me. Then I was taken to the closest hospital.

What followed was a night of sedation, memory tests, MRI scan, chest x-rays, medication and treatment for aspiration pneumonia. The icing on the cake was the insertion of a single lead, MRI compatible Automatic Internal Cardiac Defibrillator (AICD) in my left submammary pocket.

I was in hospital for nearly two weeks. Plus six weeks recovery and R&R after the insertion of the defibrillator, so I don't unwillingly pull the leads out. Put that in your pipe and smoke it.

That's the technical stuff over and done with. Now I'm at home about 3.5 weeks into that recovery period and dealing with a barrage of (sometimes random) emotions and thoughts.

The latest of which have been irrelevant, trivial details about the event. What do the ambulance officers look like? Where did they park the ambulance? Which of our neighbours in our apartment block were watching as I was carried out on a stretcher and into the ambulance? Was there a lot of traffic on the road? What route did they take to the hospital? What route would have I taken? Did Chris and Zoe ride in the ambulance with us?

Random and trivial and yet all so seemingly important in my mind. I'm not quite sure what picture I'm attempting to paint in my head. One of survival, or the adverse? If things had gone badly, what would the aftermath of my death look like?

So here we are, at the root issue: mortality.

Prior to the cardiac arrest I was terrified of death. When I came to, post the arrest, I felt somewhat comforted because I hadn't experienced any pain. I had simply slipped into an all encompassing velvety, thick, warm darkness. I figured should I be so lucky that I eventually meet my end in the same manner, I couldn't have it any better.

Even so, I now have a whole new set of questions presenting themselves. This is an area and a process I will be exploring in time to come. I did start though by watching this video on TED by Stephen Cave: The 4 stories we tell ourselves about death.

“Death, therefore, the most awful of evils, is nothing to us, seeing that, when we are, death is not come, and, when death is come, we are not.” - Epicurus

In other words:

"Death is not an event in life: we do not live to experience death. In this sense, life has no end." - Ludwig Wittgenstein

What resonated with me is the distinction and complete separation between life and death. For some reason I could never see this previously. Once we're dead, we're dead. We don't know the difference. We ourselves do not experience the loss of our lives and ourselves, it's the people left behind that have to deal with that.

For now I will continue exploring, processing and living my life, and as Mr Cave says in his presentation, ensure to make it a "good story".